Wednesday, May 24, 2006

Family Update

The big family news is that Tommy and Kelly have brought a gorgeous baby into the world. Baby Amanda is Mom's new excitement and source of energy. Although she credits her card games with the ladies as another great source.

She reports that she is doing fine. Chemo is over and she is awaiting the start of radiation, which should start around the first of June.

She is tired.

The last chemo really drained her and she claims she doesn't have her strength back yet.

"By 3 PM, I'm usually in my favorite chair reading or napping. I had a CT scan of my lungs last week. There is a small 1cm shadow, which was there in Jan. The other two spots, noticed when I was hospitalized, are gone. So I am scheduled for another PET? scan next week."

She promises that once she gets the results of her radiation schedule, she will update her blog.

And she can't stop talking about a Maya Angelou reading she recently attended.

"I went with new friends and old friends. It was very inspiring."

She said something about clouds. If you want to get her talking, ask her about her clouds.
I'm beginning to think I might want cancer. Blogs dedicated to my recovery. Card games thrown in my favor. A loving and adoring husband that waits on me hand a foot. Yeah, Mom is doing it in style.
But then, she always does. Doesn't she?

Thursday, May 11, 2006

Mom's Last Chemo was Monday!!

Cancer in the news....

Half of all cancer deaths are preventable
by KRISTEN GERENCHER
MarketWatch

Cancer can strike anyone, even the fit and health-conscious, but dying from it is far from inevitable, according to a new report.

As many as half of cancer deaths could be prevented if more people made lifestyle changes such as avoiding smoking and excessive sun exposure, eating nutritiously and getting regular exercise and recommended health screenings, according to a study from the American Cancer Society.

Whether due to socioeconomic or personal challenges, many people have trouble following these common-sense health precautions, said Vilma Cokkinides, co-author of the report and program director of risk-factor surveillance for the American Cancer Society in Atlanta.

"What's astonishing is how small the numbers are in terms of the population actually doing these things," Cokkinides said. "It's a disconnect. . . . The awareness that theoretically half (of cancer deaths) could be prevented hasn't gotten in the mindset."

Smoking is by far the biggest sticking point because it increases the risk of many kinds of cancer, not just lung, and is expected to kill 170,000 this year. What's more, about a third of the 564,830 expected cancer deaths in 2006 will be related to poor diets, physical inactivity and obesity, which itself causes many chronic illnesses, the report said.

Americans have been receiving the anti-tobacco message for decades, but one in five adults still lights up. Despite calls for better nutrition and more physical activity to maintain a healthy weight, waistlines are growing dangerously wider. And few people do enough to protect their skin from the sun's harmful rays, leading to high rates of skin cancer.

People also fail to follow commonly recommended screenings based on age, family and medical history to catch cancer in its earliest, most treatable phases, the study said.

The ability to keep up with recommended screenings for colorectal, cervical and breast cancer - where evidence of effective treatment and reduced chance of death is greatest - is largely dependent on whether people have health insurance, Cokkinides said. "It's perhaps the single most important determinant."

Cancer's disease burden is significant. Last year, it cost the United States nearly $210 billion, according to estimates from the National Institutes of Health. The figure includes $74 billion in direct medical costs, $17.5 billion for lost productivity due to illness and $118.4 billion for productivity loss due to premature death.

To be sure, tasks such as maintaining a healthy weight can be difficult in environments that promote fast, unhealthful food and lack affordable fruits and vegetables, the study said.

Obesity has connections with postmenopausal breast cancer and colon cancer, Cokkinides said. Still, the number of children, teens and men who were overweight or obese grew significantly between 1999 and 2004, according to a study from the Centers for Disease Control and Prevention published in the April 5 issue of the Journal of the American Medical Association. Women's obesity rate appears to have leveled off, the study found.

Women's screening rates for breast and cervical cancer have increased over the years as awareness has grown, but the numbers are still modest. Only 55 percent of women 40 and older, the age at which annual screenings are supposed to begin, said they got a mammogram in the last year, the study said. Those who are uninsured, have the lowest incomes and least education as well as immigrants who've been in the country less than five years had even lower screening rates.

Colon and rectal cancers have a high survival rate when detected early, especially when precancerous polyps can be removed during colonoscopy. But only 39 percent of colon cancers are diagnosed at an early stage, when 90 percent of patients go on to survive at least five more years, according to the report.

Even when patients have a hereditary link with cancer, they can choose to have cancer-risk counseling that may help them take control if further prevention options or more aggressive screening is needed, said Dr. Jeffrey Weitzel, director of the Department of Clinical Cancer Genetics at the City of Hope Comprehensive Cancer Center in Duarte, Calif.

"Genetics isn't necessarily destiny," Weitzel said. "Advanced protocols . . . are designed to take what we know about breast cancer and epidemiology and turn it around in a way that might allow prevention."

Earlier diagnosis of breast cancer, for example, often allows not just for better odds of beating it altogether, but also better quality of life during treatment than was achievable even a few years ago, he said.

"Right now what we have is a good circumstance," Weitzel said. "We're having to try to figure out ever more carefully which of the early-stage patients truly need therapy and which could be spared, whereas previously we were hoping just to have a greater proportion of them be earlier-staged."

Weitzel recommended people interested in learning more about guidelines for screening and referrals, particularly those with a familial risk of cancer, visit the National Comprehensive Cancer Network's Web site at www.nccn.org or the City of Hope at www.cityof hope.org/ccgp.

As a general rule for those with a family history, "if there's cancer under the age of 50, breast or colon, that might warrant referral in cancer-risk counseling," he said. "That would be the starting point."

It's not just individuals who can improve their chances of surviving cancer by modifying their lifestyles and complying with recommended screenings. Social policies such as more statewide bans on indoor smoking and targeted cessation programs for teen smokers can help people develop healthier habits and, most importantly, stick to them to reduce their risk of dying from related disease, Cokkinides said.

Wednesday, May 03, 2006

C O N G R A T U L A T I O N S !!!!


"How did he do it?"

She smiled. "It was really romantic."

"Joe Wiese, romantic?"

"Well, he was going to do it on the road at a park near Lake Shasta, but it was cold and rainy. Then he was going to do it on the beach after we signed our lease, but it was cold and rainy again. So he spent 30 minutes trying to get our gas fireplace to work. After he got a fire started he made a bed on the floor in front of the fireplace. He sat down next to me and said the sweetest things to me and then he told me the story about how your dad sold his blood to buy a ring for your mom (he pulled out the box) and then asked me to marry him with the ring that sealed your parent's fate. I was crying, he was crying . . .it was well . . . very special. "

CONGRATULATIONS to my brother and his beautiful fiance Jennifer Hernandez. Welcome to the Wiese family!!! Perfect timing for some good news in the Wiese household.


Tuesday, May 02, 2006

All the news that is fit to print...

Dear Family,

Hope all is well. This is a short note with current update.

Saw the Oncologist today. My white cells, red cells and platelets are back to normal. I do not have to postpone my next and LAST chemo on Monday the 8th. I feel good.

I've been walking as much as possible. Hope to play cards with Jane and Carolyn tomorrow.
Mike is still looking at boats and enjoying the process. He went to Victoria and Sydney yesterday by ferry to see one in B.C. On the way home, he stopped at the BC museum and bought me a beautiful blue stone and mineral necklace. It worked. I gave him permission to get a bigger boat!

Talked to Joe's fiancee, Jenn. She will be joining Joe at Pendleton in early June. They will have a civil ceremony on or about June 10th. Her parents and Dad and I will be there. Joe is enjoying setting up their new apartment. They hope to have a church wedding early next year.

Katryn will be camping in Hawaii in early June. Ingrid is working in DC. She should be returning to NYC soon. We have been having a great time tracking her exploits via her blog.

Maiken is busy and fine. She recently appeared in an off-off Broadway play that got rave reviews. Especially from her sister.

We hope for a visit from Kirsten this summer. She managed to get out to DC to meet Joes's fiancee and have lunch with Ingrid.

This Sunday, Kaitlyn makes her first communion. Georg and Joe will represent us. Jared's hockey team won the regional championship and Jared is one of their MVP.

I'll be fitted with an arm sleeve next week to wear when I'm flying. It keeps down the swelling in my arm with lympodema. I plan to fly to San Diego for Joe and Jenn's vows and to NJ for brother, Mike's wedding.

I send my love to each and everyone.

Mom/Susie

Wednesday, April 26, 2006

Cancer was not boring this week

Well, there’s been a blip in the easy chemo route and Cancer has definitely not been boring this week.

After a great Easter Weekend with Friday seafood buffet at the Yacht Club and Easter Sunday Brunch with my church group at Meadowbrook Golf Course, I had my 5th Chemo on Monday.

Nancy Kennedy and Judy Baerg accompanied me. Judy brought along the most beautiful yarn for Nancy and me and attempted to teach us to knit. We got really good at the “pulling out stitches” part. Our scarves were supposed to have 20 stitches across. By the end of our session, I had 27! It did keep us, other patients and nurses thoroughly entertained. Chemo went fast that day.

We went to “Indochine “ in UP for lunch and laughed a lot. I came home and took a nap. I had noticed that I was tiring more after treatments, which I had been warned would happen.

Tuesday I took a long walk uphill with my walking buddy, Carolyn Hudson and went into Oncology for my white blood cell shot. That night my son, Georg, and I played cards until 11PM.

Wednesday, I could hardly stand up. Did manage to get my make up on, get dressed (there are priorities!) and get into a chair before my traveling nurse showed up. I was running a slight temperature and she convinced me to go into Oncology, where they gave me intravenous fluids to re-hydrate me and sent me home. Felt much better but went to sleep early. Started getting chills and the shakes during the night.

Mike took me into the hospital with a temperature of 104.4. They ran tests on me in the ER and admitted me. My teeth were chattering so much, I couldn’t breathe. As my temperature reached 104.9, they told me I had to remove all blankets and they were going to put an ice blanket on me.

I told them they were out of their minds.

Luckily the massive antibiotics kicked in and my temperature went down. There was a blip on my lungs which I worried was cancer and was relieved to find out was only pneumonia.Now the fun began and they had to figure out what I had.

I had E Coli sepsis bacteria that had invaded my blood stream and was running rampant. They couldn’t find the source. I had two blood transfusions on Saturday. After getting slightly better, I got worse.

On Sunday, they decided that my port was infected. The surgeon wanted to wait to Monday to operate because my platelet level was 60. I told him if he waited until Monday, it would be lower as that was usually my nadir. I got a platelet transfusion. He operated.

I felt instantly better and planned to go home on Monday. after another CT and chest XRay.Three of my Doctors signed me out but I waited all day for my Intensive Medicine Doctor, who showed up at 6 PM. Mike had packed my bags and we were ready to escape.

She told me she had just come across my ECHO test and I had blip on my right heartvalve. I would have to remain in the hospital for more tests and would be on intravenous antibiotics for the next 6 weeks. As the implications sunk in, I was devastated. Did this mean the cancer had metastasized?

After she left the room, Mike asked me when I had taken the ECHO test. I said I knew I had one in January. Perhaps that was the one to which she was referring. But she had mentioned it was the day I was admitted. I remember very little of that day. Mike said he was with me that whole day and he didn’t remember that test.

He went out to talk to her.It turned out she was reading 3 charts of different patients, at the same time. The test in question was done on another patient, not me.

I was home free and we ran out of the hospital, not even waiting for the customary wheelchair.

New instructions given me are that I can do no gardening, eat no raw veggies or fruit, can’t have fresh flowers in the house, can’t eat nuts with shells or cheese with mold etc. Also I am not to go to buffets...

Feel fine but have very low white blood cells and low platelets. Therefore I'm lying low and seeing no visitors this week until my counts are up. You can always call me or e-mail me. It's great to be home. Will love having this chemo over but next and last session may be rescheduled.

Thanks for your calls and support and those wonderful hospital visits. My first Friday Lunch group sent me beautiful flowers from Blitz. However they weren’t allowed on the floor so they were delivered to the house. Mike took pictures of them and printed them on an 8x10 sheet and put them on an easel in my hospital room. Now the picture sits atop my piano and reminds me of my dear friends.

Thank you all.

Thursday, April 20, 2006

Mom's in the Hospital

She's available via cell. Apparently she had some complications from her last chemo. Her temp got up to 105, but it's down now. She will be in the hospital until Monday.

She says she's bored. So if you have any TomKat gossip, she's all ears. And she's on so many meds you could tell her the same piece of gossip three times and she'll always think it's new.

I'm sending virtual hugs, so give her an extra squeeze for me if you acually get to see her.

Wednesday, April 12, 2006

Mom still hasn't learned to post her own entries...

Dear Daughters and Sisters,

I met with my radiation doctor today.

He gave me an ok to attend the Ford-Moore nuptials . We will arrive late Thursday evening and leave late Sunday so I only miss one day of radiation. We are staying at a B&B that Mike recommended for Tara's wedding. We stayed there with the Victorsons. There is only one other couple registered that weekend in the Honeymoon suite. Mike, Is that you?

We are really looking forward to a weekend away since life has been confining since December. I'm also loving seeing Mike's kids again. They have been so welcoming to us.

My radiation doctor emphasized once again that my sisters and daughters and (possibly my nieces) have mamagrams and inform their doctors what is happening to me and our family's history. He feels this is very important as they enter their 30's and 40's.

We are delighted with Tara's news. How exciting. I guess with all the pregnancies occuring, this was the way to steal the show.

Good timing , Tara!

All is well. The boys are here tonight and Jen, Josef's girl, arrives tomorrow and drives down to Pendleton with him.

Wishing you a great Easter.

Much love,Susie

Wednesday, April 05, 2006

A letter from mom...

Ten days ago was my 4th Chemo.

I am over the halfway point. My good friends, Ann Bailey and Carolyn Modarelli Adams accompanied me . The weekend before, we and our husbands went to the dueling piano bars, “Chopsticks”. We, women, had a great time. Our elderly husbands are claiming eardrum damage! Fortunately, we still had plenty to talk about during treatment. I brought cards and we played a new game.

Time passed quickly.

They took me to a late birthday lunch at “Stanley & Seaforts”. We still had plenty of things to talk about... the advantage of husbands and kids.

Carolyn had made up a special “Harper’s Bazaar”, which featured the 3 of us in our black cowboy hats in wonderfully sexy poses and clothes. I will bring it to the next luncheon of the ladies. The magazine has a permanent spot on my coffee table.

I have many brave friends who go to chemo by themselves and have no doubt, I could do the same. Having my friends accompany me has made a difficult day fun. When I look back on the past 4 visits, it is not what they have done to me or what news and treatments they have discussed, It is always the memories of my good spirited friends, that I take away with me.

Thank you, all!

Definite patterns are developing in my routines. The 3 days following chemo, I am on heavy doses and shots of drugs. Except for the first session, the side effects are under control. However, last week, I was very fatigued by the weekend, more so than previous treatments. Also by the 2nd week, my white blood cell count was very low and I was susceptible to germs, virus,etc. I was warned to stay away from anybody sick and avoid crowds. They give me a shot following treatment to increase new white blood cells but it apparently doesn’t kick in for a week. By the time of my next session, it should be in the normal stage.

Last week, I also got swelling all over my body and especially in my left arm, where they took out 19 nodes. We were worried that Lymphadema had started. (Something, I had been warned about, that could occur at any time in my future.) So...I was sent into the hospital for another MUGGA test to see if my heart has been affected by my dosages. I haven’t heard the results, which were due 2 days ago, so I assume “no news is good news”.

Every Thursday, I go to physical therapy, where the therapist works on my arms and scar tissue to break it up. That can often be painful. She keeps me talking to distract me from what she is doing. ...again husband and children provide lots to talk about...

Mike and I saw “Wonderful Town” and “Joseph and the Amazing Technicolor Robe” in the past weeks. Both were fun and entertaining. They were in Seattle so we made a day of both productions. Chico stock goes up on the days I’m in the big city. We’ve also driven to Bellingham to look at boats. I think we’re in the boat buying mood again. It would be nice for Mike to have a hobby other than me!

Since we are rather confined to the immediate area, a boat would be a good diversion to our regular Dr. visits.I’m trying to walk daily if weather permits. I’ve found some friends who have come over to play cards once a week and I read a lot.

Joe and Georg will be home next week and liven things up on the homefront. The pace is slow but LIFE is good.

Thanks for checking up on me.----Susie.

Wednesday, March 08, 2006

Good News!...

Dear Family,

Today was my 3rd chemo so I am halfway through this chemotherapy. The next week could be rocky or not. The last chemo had few side effects so I hope this is a repeat.

Lots of medicines, steroids, poisons, shots and preventatives going in... lots of things happening all over my body but so far I really do feel fine. Ask me next week.

Two fabulous friends, Marty Osbourne and Mary Rowlands, accompanied me on this adventure. They brought me tulips , movie and trash magazines and strawberries. When over, they took me to lunch with their friends from North Tacoma. It was a treat and made my treatment day fun!

I continue to get support, e-mails and calls from all of you and this is immensely satisfying.

Yesterday I read a really great short novel from Costco called "The First Five People You Meet in Heaven". It's written by the author of "Tuesdays With Morrie." I recommend it to all of you. It takes about 1 1/2 hours to read and is quite uplifting. So if you see it, pick up a copy and enjoy and uplift.

Good News for all family. My gene test came back negative for BRCH1 and BRCH2. This means that I don't carry the well publicized gene (with an 85% positive result) that is passed down through families so you can breathe a sigh of relief. If I don't carry it , none of my offspring, boys or girls has inherited it to send down to their children. I doubt that My siblings carry it either. Obviously if one of us had it, it would be me!

The Dr. does want me to meet with a geneticist after I'm through treatment to go over the family tree. Not all breast cancer is inherited but there is a strong predominance in our family tree. So I would continue to urge all Fords and future generations to get mammagrams, do the mirror test and mention Lobular cancer to your doctors.

It is a thickening of the walls, a mass not a tumor. One out of 9 women develop breast cancer. The sheer numbers of Crowley and Fords alerts us to be vigilant!

I wanted to get the results to all of you immediately. Now we can rejoice in babies and good news and put this scare behind us.

Much love,

Susie

Tuesday, February 21, 2006

From Aunt Kay...

Dear Ones,

Mary Kate and Rob are having a baby!! Our grandchild is due around September 6!!

Some of you know this because MK called me in Tacoma while I was celebrating our collective sister birthdays and said, "I got yousomething you've wanted for two years...!"

Vern is at a conference at the Lutheran School of Theology in Chicago this week and staying with the parents to be.

Barb and I had a grand time with Susie and Mike...gourmet breakfasts, lunches, dinners prepared by Chef Mike, mid-morning coffee while gazing at the Sound and Cascade Mtns, evenings at the theatre (have you all seen MENOPAUSE, THE MUSICAL?), afternoons working on the quilt puzzle, a walking tour of Steilacoom, ooooh and I almost forgot, a visit with Anton the Czech wigmaker and much more.

The new home is quite wonderful. More later...xoxo Kay, Aunt Kay, Momala

Wednesday, February 15, 2006

This just in...

Spoke with Mom and Dad today and they report that all went well yesterday at the doctor.

Mom was able to regulate her blood cell count without medication (I messed up the low/high before).

There was more, but it is all very complicated and only someone like Dad could remember all those details.

Suffice to say, Mom is doing well. She's walking lots, has plenty of friends dropping in on her and has not killed Dad yet.

Send me your Susie Sighting to report and I will be sure to update the fans.

And Mom, in case Dad forgets to tell you, I called today.

Tuesday, February 14, 2006

To my mother...


Happy Valentines Day Ma!
Hope it's the breast ever.....

Monday, February 13, 2006

Mom's friend June writes...

...Just returned after Judy Donley and i took your mom in for her 2nd treatment. She was brave and awake the whole time that we chatted. Judy's and my game plan was to play everything by ear and to see how your mom was faring before we took the next step. susie didn't appear too tired and so we drove over to judy's new house to see how the remodel was going and for your mom to offer judy some decorating suggestions. i'm glad we did that because susie came up w/ some terrific ideas. after that we went out for lunch at affairs in u/p. i hope that we did not tire her too much. now re: blogs did you send this to all the first fridayers? this is a great way to keep up w/ how your mom is coming along esp w/ treatment. good job ingrid. j...

CHEMO DAY!!

Today, mom has her second chemo treatment.

The next one is on the 6th of March so mark your prayer calendars.

According to mom, there will be six chemo treatments followed by six months of radiation. This may be wrong... I'll clarify with big papa and get back to you...

Today is a good day to call and check in!

ING

Friday, February 10, 2006

... Costco ...

Just got off the phone with mom. She was outside Costco, which immediately brought memories of the beach in the summer, frozen hamburger patties and industrial size mayonaise.

Her sisters just left. They partied every night and dad turned into Mr. Martha Stewart.

On the day her sisters arrived, mom received her new wig. She may be the first Wiese to have a full head of thick bushy blonde hair.

Her red blood cell count is high, which makes her Anemic. It would seem that makes her White blood cell count low... which gives her something in common with Brother Georg.

...Still claiming life is good... still claiming Dad is great.

What's your news?

Tuesday, January 24, 2006

Mom and Dad, Post Surgery

Sunday, December 25, 2005

Introduction

This is the blog of one woman's journey with Breast Cancer. It is a daily, or sometimes weekly check in that will keep friends, family and fellow survivors informed. Enjoy...